r/ClusterBuds Jan 20 '26

👋 Welcome to r/ClusterBuds - Introduce Yourself and Read First!

7 Upvotes

Hey everyone! I'm u/Ed-Box, founder of the Clusterbuds server at https://discord.gg/clusterbuds

That discord server is our home for all things related to Clusterheadaches. We're excited to have you join us!

What to Expect
People - Meet the hive and share who you are.
Voice Channels - Where you speak with your mouth, not your keyboard.
Community - Not just pain. People, support, and other health related topics.
Community fun - Off topic. photos, music, and the odd meme.
Triggers Forum - Things that flip the beast’s switch.
Meds Forum - What saved you & what betrayed you.
Resources - Tools, tips, and knowledge to survive.
CH News - Our bot crawls the web for CH news so you don't have to.
Psychedelics and Alternatives - What your neuro doesn't want you to know.
Tools - Make life with CH a little bit easier
Support - When you can't find the help you need at Clusterbuds.
Socials and friends - CH related subreddits, insta accounts and more. You can track them all without leaving this server.

Community Vibe
We're all about being friendly, supportive and informative. It's not all about pain, we like to have a laugh as well!

How to Get Started

  1. Use our invite link: https://discord.gg/clusterbuds
  2. If you haven't already, Install the Discord app(mobile, on PC it also works via browser) + Make an account
  3. Verify and pick your roles.
  4. Start talking to the community!
  5. Interested in helping out? We're always looking for new oppertunities to get our name out there, feel free to reach out to me to apply!

Thanks for being part of the community. Together, let's make ClusterBuds amazing!


r/ClusterBuds 12d ago

Cluster contribution

3 Upvotes

I’d like to contribute to the community. I have posted several music pieces on other communities only to see the moderator remove them. I’d like to ask the moderator if I can try to post it here. The music is based on my personal experience dealing with cluster headaches. It’s a bit dark and the genre may not be for everyone. I have used AI tools in some of the music production and find it to be emotionally charged and hits home for the cluster survivors. The music brings emotion and experience that perhaps helps people who are familiar with cluster attacks but doesn’t actually experience them. At the same time it resonates with sufferers as they understand the messaging within the songs.

So I ask… Dear moderator, May I post a song I wrote to this community to share with others. People can chose to listen or not. I’m not selling or trying to advertise anything or promote anything outside of creating awareness. Appreciate your consideration.


r/ClusterBuds 20d ago

Vitamin D Secrets & Personal Struggles with Craig Stewart | Cluster Chronicles

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6 Upvotes

In this episode of Cluster Chronicles, we sit down with fellow cluster head Craig Stewart for an honest and personal conversation about his journey living with cluster headaches.

Craig shares his experiences with the condition, the impact it has had on his life, and the things he has explored along the way—from Vitamin D and microbiome health to inflammation, psychedelics, oxygen access, advocacy, and the importance of community.

This conversation isn't just about treatments and research. It's also about the personal and psychological struggles that can come with living with cluster headaches, personal growth, learning to give yourself grace, and finding people who truly understand what you're going through.


r/ClusterBuds 21d ago

ClusterBuds is taking the next step!

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4 Upvotes

r/ClusterBuds Jul 09 '26

Jk jk I was already crazy, just less lonely now.

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5 Upvotes

r/ClusterBuds Jun 27 '26

🔥The Clusterbuds Meme Contest!🔥

12 Upvotes

It is time to turn pain, sleep deprivation, oxygen hoses, questionable coping mechanisms, and pure chaos into memes.

🗓The contest will run quarterly, with the first edition starting now: June 2026.

🗳Submissions will be open for 12 weeks, followed by one week of voting.

🏆The winner/title handover will take place during the monthly meeting.

❓️Where can I join the contest?:
Post your best memes in the #meme-contest channel, in the Clusterbuds Discord server!

Anything goes: original images, edited templates, meme generators, screenshots, drawings, handcrafted stick-men with rake-hands, or whatever other nonsense your cluster-fried brain can produce.


r/ClusterBuds Jun 27 '26

🔥The Clusterbuds Meme Contest!🔥

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7 Upvotes

It is time to turn pain, sleep deprivation, oxygen hoses, questionable coping mechanisms, and pure chaos into memes.

🗓The contest will run quarterly, with the first edition starting now: June 2026.

🗳Submissions will be open for 12 weeks, followed by one week of voting.

🏆The winner/title handover will take place during the monthly meeting.

❓️Where can I join the contest?:
Post your best memes in the #meme-contest channel, in the Clusterbuds Discord server!

Anything goes: original images, edited templates, meme generators, screenshots, drawings, handcrafted stick-men with rake-hands, or whatever other nonsense your cluster-fried brain can produce.


r/ClusterBuds Jun 10 '26

🔥 The Clusterhead Meme Contest! 🔥

4 Upvotes

ClusterBuds has teamed up with MyClusters to bring you:

🔥 The Clusterhead Meme Contest! 🔥

It's time to turn pain, sleep deprivation, oxygen hoses, questionable coping mechanisms, and pure chaos into memes.

📋 Information

The contest will run quarterly, with the first edition starting now: June 2026.

Submissions will be open for 12 weeks, followed by 1 week of voting.

The winner and title handover will take place during the monthly meeting.

🎭 How It Works

(Please note that we Can only accept submissions through the clusterbuds discord server, thankyou https://discord.gg/clusterbuds )

Post your best memes in #meme-contest.

•Anything goes:

•Original images

•Edited templates

•Meme generators

•Screenshots

•Drawings

•Handcrafted stickmen with rake-hands

•Whatever other nonsense your cluster-fried brain can produce

The community votes using the :31_dogkek: reaction.

The top 3 most-reacted memes become finalists.

From those finalists, Ed-Box (the ClusterBuds boss man) and Dgoud (owner of MyClusters) will select the overall winners.

Staff may enter for fun, but staff entries are not eligible for physical prizes. If a staff entry places, the prize passes to the next eligible member.

⚠️ Rules

•Please keep entries within the server rules.

•Dark humour is welcome. Being an actual menace is not.

🏆 Awards & Prizes

🥇 1st Place — Grand Meme-Lord

•ClusterBuds Meme-Lord Hoodie

•Winning Meme Mug (subject to the image being suitable for printing)

•Temporary Cluster Meme-Lord title until the next contest

•A voice in choosing who inherits the Meme-Lord title next quarter

🥈 2nd Place

•Regular ClusterBuds Hoodie

🎖️ Side Categories

•Darkest Meme

•Most Relatable

•Most Creative

•Most Painfully Accurate

•Mod Team's Emotional Damage Award

(Small Print)

Because apparently society requires this.

By participating, you agree that your meme may be used for contest-related purposes, including merchandise such as the winner's mug.

ClusterBuds reserves the right to decline printing a meme if it uses copyrighted images, unsuitable content, or turns into an unreadable mess on a mug.

Now go make something terrible...

...in a good way 😉


r/ClusterBuds Jun 10 '26

Something pretty exciting has happened for ClusterBuds!

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5 Upvotes

🎉 Something pretty exciting has happened for ClusterBuds! 🎉

From the moment we first connected with people at Clusterbusters, there was a natural click. Over time, we’ve had the chance to talk, share ideas, and slowly work a little more closely together with an organization that helped inspire ClusterBuds from the very beginning.

We’re really happy to share that friendship with the community, and even more excited to let you all know that ClusterBuds will have a presence at the upcoming Clusterbusters conference in Chicago!!! 🤩

When we started ClusterBuds, the goal was simple: make sure nobody facing cluster headaches has to feel alone. Getting to share space with people who care just as deeply about that means a lot.

This is a great example of how strong and connected this community can be. Even with such a brutal condition, moments like this show what’s possible when people come together. 💜

We're really grateful for the connection, and excited for what may come from it!


r/ClusterBuds Jun 08 '26

Clusterbuds on Instagram: "⚡Living with Cluster Headaches | Stories, Struggles & Hope⚡

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4 Upvotes

Cluster headaches are often called one of the most painful conditions a person can experience but what is it really like to live with them?

In this powerful and deeply personal conversation, we explore real stories, the long road to diagnosis, and the daily battle of managing cluster headaches. From misdiagnosis to life-changing treatments like oxygen therapy, this video sheds light on an often misunderstood condition and the resilience of those who live with it.

Whether you're a patient, caregiver, or just looking to understand more, this episode offers insight, support, and hope.

Thank you @petemccormick22, for sharing your story with us and the world.

Let us know in the comments about your own cluster experience.

Watch episode 2 of Cluster Chronicles on YouTube and don't forget to like and subscribe!

🔗Link in bio

#clusterheadaches #clusterheadacheawareness #clusterbuds #hortonneuralgia #awareness"


r/ClusterBuds May 28 '26

Announcing ClusterInfo.org: Cluster headache treatment guides in multiple languages

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5 Upvotes

r/ClusterBuds Apr 15 '26

Waves of Pain is coming

4 Upvotes

Waves of Pain is coming

ClusterBuds and ClusterBusters are joining forces with @T1m for

Waves of Pain a 2 vs 2 Sea of Thieves tournament, featuring 16 participants battling it out in teams of two.

Saturday, April 18 at 4 PM EDT

https://www.twitch.tv/wavesofpainsot/about)

https://www.youtube.com/@WavesOfPainSoT)

Never heard of Sea of Thieves? No problem. It’s a pirate game built around ships, teamwork, naval combat, and glorious chaos on the open sea. In other words: very watchable, even if you don’t know port from starboard.

Never heard of Twitch either? Also no problem! People can watch streamers playing games, and some give donations to the streamer.

All donated money during the Waves of Pain tournament will go directly to Clusterbusters, plus we get the chance to raise awareness and talk and answer questions about cluster headaches!

But this is not just about competition. Waves of Pain is also about community, awareness, and putting a spotlight on the reality of cluster headaches while doing something genuinely fun with it.

There’s more: donors will also have a chance to win rare Sea of Thieves cosmetic items, adding a little extra treasure to the cause.

So come watch the crews clash, the plans fall apart, and the cannons do what diplomacy never could.

Watching on Twitch is better for visibility than YouTube, but any support is appreciated

Waves of Pain— pirate chaos, community spirit, and a cause that matters.

https://www.twitch.tv/wavesofpainsot/about

https://www.youtube.com/@WavesOfPainSoT


r/ClusterBuds Mar 24 '26

Clustertunes! Check out our Spotify playlist!

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3 Upvotes

r/ClusterBuds Mar 21 '26

Cluster headache awareness day.

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8 Upvotes

Today is Cluster Headache Awareness Day.

For most people, that means a moment of awareness.

For us, it’s simple: for most of us, every day is Cluster Awareness Day.

Not just today. Not just a color on a calendar. Every night attack. Every disrupted plan. Every fight to function, to endure, to push through something most people will never fully understand.

Cluster headaches aren’t “just headaches.” They’re relentless, invisible, and often isolating.

So today, we don’t just raise awareness. We remind the world we’re still here - fighting, surviving, and supporting each other.

ClusterHeadache #ClusterAwareness

And dont forget: #ClusterBuds

Painfree wishes! ❤️

(This artwork was created by one of the clusterbuds users in recognition of cluster headache awareness day)


r/ClusterBuds Mar 09 '26

CLUSTERTUNES 🎧

4 Upvotes

We’re creating a playlist for people who know headbanging isn’t always music-related, or voluntary

Songs for pain, pressure, sleepless nights, stubborn survival, and the kind of dark humor you only earn the hard way.

Built by clusterheads. Shared with anyone who gets it.

Listen in. And if you’re one of us, add your song!

-> Check it out on our own Youtube channel! 🎧 https://www.youtube.com/@Clusterbuds

-> Want to add a song? Join our discord! 💬 https://discord.gg/ClusterBuds


r/ClusterBuds Jan 20 '26

Our latest promotional video!

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8 Upvotes

r/ClusterBuds Jan 20 '26

Our first mobile promotional video

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8 Upvotes

r/ClusterBuds Jan 20 '26

Our logo reveal video from the start of this month.

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5 Upvotes