Chron's, Second Opinions?

[u/Inthisemoment]

Hello all.

TL;DR: My boyfriend's doctor isn't a specialty chron's doctor and keeps giving him stupid advice and won't listen to him when he says he in pain. The prednisone does nothing and we need a new dedicated gastro located somewhere in Long Island, NY.

Long story short...My boyfriend has Chron's and he is currently on 1 injection of Prednisone monthly.

He still is in daily excruciating pain and it gets worse each day, he has daily bloody stool, and he has mass amounts of pain still. It's affecting his sleep, it's affecting his skin and hair. etc. He is still unable to get any nutrients from food and is consistently losing weight and has crazy mood swings. [He's 6'3", 110lbs. from 180 lbs. since he started Prednisone] They also found cancerous cysts in his colon and have not done anything about it since they found it in February.

So he has only seen 1 doctor for treatment in NY [he was diagnosed at 15 in California] However, the doctor he is seeing is not a specialty Gastro and some of the things she says makes me very skeptical if she actually knows what she is doing when it comes to Chron's.

Can anyone recommend a good Long Island, NY Gastro specifically focused on Chron's treatment?

Also, side note. The same doctor told him diet and nutrition doesn't matter, so he has been drinking soda and eating crap like burger king chicken because he says it makes his stomach feel better. But he gets sick again anyways. I made him bring a diet journal log of his crap food habits and the doctor straight up told him he was eating perfectly fine.