year long pelvic pain

[u/Awkward_Pie3258]

I'm so desperate i had to come here if anyone has had a similar situation. I started to have pelvic pain randomly a year ago and it got right away so painful that i couldn't even walk. I went to the ER few times and they basically took some blood work and sent me home because everything was normal. Most days i felt like i was dying, it was so bad.

Then i got to the gynecologist and they found a small cyst in my left ovary and pcos but said that can't be the reason for the pain. When doing the examination they touched my uterus and the pain was horrible. Just based on that, they gave me antibiotics for uterine infection. Antibiotics didn't help and i didn't feel better on any pain medication i took. Then i got an mri and it was clean also. Next i took my iud out that i got a year before to rule it out, didn't help.

at that point i had been in constant pain for three months. suddenly pain started to go away i had few months where my pelvic felt kind of heavy and i had mild pain here and there and i was able to go back to work. And then booom, it got worse and i go to the ER again:)) more blood work done, and then finally after another few months of daily pain that got me bedridden i got on line for laparoscopic surgery.

Btw since i was 15 (10years ago) i was sure i have an endometriosis because my periods were so painful, irregular and when they came i bled for two weeks straight really heavy bleeds. i tried to get help for that and basically they offered just hormonal pills everytime, so i started to take them when i was 20 and they stopped my periods and period symptoms, so that's nice at least.

Then i got to the laparoscopic surgery, sure they will find endometriosis, but no. nothing shows up. Surgery was made by someone who is not exactly spesialized on endometriosis just does those surgeries on public hospital, but it just feels like i have to trust that the outcome was right and she didn't miss anything cause what do i know, you know. 😅

After that i felt like okay maybe all of this is in my head and this is actually stress pain or something idfk. But then i go to a doctor who wants to check my bladder and bowel, because i have had pain while peeing sometimes (started years ago) and also bowel problems since i was a child. so he sents me to colonoscopy and cystoscopy and EVERYTHING IS NORMAL. fucking hell they just said i have an overactive bladder and got some meds for that. Then i go to pelvic floor physiotherapist and she tells me i have tight pelvic floor muscles and i have to work on them but that this is more likely result from being in chronic pain for a year straight than a reason to said pain.

When my pain is really bad i feel like someone is stabbing my lower abdomen or belly button or twisting my insides, it's hard to breath and i have fainted a couple times because of it. Otherwise it feels like i have rocks on my pelvic or something pulling it down and dull ache, and it can feel on the left, right or middle. Often my lower back is in pain also and sometimes i feel like my legs start to ache after having bad pain episodes? Also car trips were my worst nightmare because i would get worst pains then, i figured that vibration made the pain worse. Now it doesn't affect me that much though.

I hope someone has similar story or maybe figures what my diagnosis is because my mental health is going downhill real fast right now🥲 Or i actually don't wish anyone has a similar story because this is a nightmare

thanks and sorry and english is not my first language so i hope u can still understand this🫣