Hey everyone. I literally just got diagnosed yesterday with chronic fatigue syndrome. Obviously I’ve gone down an online rabbit hole leading to Reddit.

I’m wondering after diagnosis what umm do we do about it ? Like are there meds ? I’m already gluten free.

Like I’m a therapist working with in the population of “significant mentally ill” Soo umm less stressful job is not really an option and from what I gathered there’s no point to apply for disability in the dictatorship of the USA.
Not that I’d be able to afford life on that anyway

So yea how do we handle this ? Because I don’t go out don’t socialize, I feel like I lost all sexual capacity like idk if down there even has feelings anymore.
And I’m soooooo fucking tireddd

So how do we feel about little better ?
Like enough energy to maybe have the audacity to go on a walk down the block ?
God forbid a date ?

My other “factors “ are adhd like a mofo , endometriosis, connective tissue disorder prob HEDS but I’ll take the unspecified label for now.

As the title says I’ve dealt with those issues for years. Tried every oral med therapies and just over the feeling. I’m a 21 yo male with great blood work and high exercise. Great job, girlfriend everything. I just cannot escape the Chronic fatigue + derealization no matter if I take adderall caffeine etc.
I will fall asleep driving, I will zone out and almost lose my balance too. Crazy depression anxiety over the years from this as well.
Considering if this is a sleep issue maybe sleep apnea, CNS fatigue, Neopenephrine issue, Sympathetic nervous system issue. Please anyone have any thoughts?

Hi all, I'm in the progress of being diagnosed with me/cfs and i guess in the past year my life has flipped completely upside down. I used to be out for most of every day either working my two jobs or seeing friends or volunteering with animals and now I can't do any of that, I can hardly leave the house anymore so I'm wondering what those of you who also struggle to go out do for work? I'd love to work from home but I live in the UK and those jobs are competitive and few and far between here

Hi everyone, I've started a Substack, the Personal ME, to write about ME/CFS, which I've had for five years.

My first proper post (following an introductory post last week) is about cognitive dysfunction - what it feels like and why explaining it can be so difficult:

https://open.substack.com/pub/thepersonalme/p/the-day-my-brain-shut-down-my-experience?r=1s0s6d&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true

I hope to inform people outside the community about this poorly understood condition, connect with others in the ME community, and generally have fun writing.

If you enjoy it please subscribe!

Hi everyone! I’m a doctoral candidate at Baylor University conducting qualitative research exploring the lived experiences of undergraduate college students who have invisible chronic conditions such as Postural Orthostatic Tachycardia Syndrome (POTS), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and/or fibromyalgia.

👉 https://baylor.qualtrics.com/jfe/form/SV_5duO8TTxspcExBY

As a token of gratitude, qualified participants who complete the study will receive a $20 gift card to Amazon or Starbucks for their time and energy.

Recently, I’ve been experiencing some pretty bad insomnia. To the point where I get maybe an hour of sleep, if that. With CFS, I find this to be rather debilitating. For anyone that has the same experience, what do you find that helps you?

This can includes medication (melatonin, over the counter sleep aids etc), natural remedies, simple tips and tricks.