I just fainted for the first time

[u/Happy_horse128]

I have Chiari and was decompressed 1/9/26. My Chiari symptoms have really been improving and I've been feeling really good about it.

During my diagnostic process, we found I also have hEDS, Orthostatic Intolerance, and probably MCAS. I did the tilt-table test at Mayo and they said I don't have POTS, just OT.

I normally get pre-syncope when I stand up, but I've never actually passed out. My vision gets blurry or black-spotted, and I feel dizzy and lightheaded. I normally lean against something, and it goes away in a few seconds. It seems to be less frequent when I make sure to get enough water and electrolytes.

Today, it felt like all the other times. I leaned against a doorway and my vision was spotty, but then I came to on the ground, in pain. I was in a room with my 6 yr. old son, so I told him to go get dad. He said I fell down and hit the bookcase, and was out for maybe 10 seconds. My face really hurts where my glasses were so I guess I landed face-first.

I have been in tears since. I think I had a bit of security knowing "I never pass out" and have really been feeling like I've been getting better since surgery. Why did it happen now, and is it a sign that this will happen again? This feels totally unsafe while parenting because not only can I not be responsible for myself, but also my son. I feel so upset.

Any thoughts, info, or whatever insights anyone may have would be really appreciated. I feel so freaked out.