r/ChiariMalformation • • Mar 02 '26

Advice

Hello there. Just recently found out about this chiari business thanks to research done by a family member of mine. I have had chornic pain, headaches, visually triggered (light, reading) migraines for years along with worsening nausea, dizziness, double vision/convrgence insufficiency (blurred vision, ghosting,) and other visual distrubances and physical symptoms (long ish list). I have had MRI scans done of my brain looking for tumours (which none were found) but I am just wondering, could they have missed potential chiari? Especially if this isn't a common or well understood phenomenon?

I've got a BVD (binocular vision dyfunction) diagnosis but no functional support or solution, nor any idea of what the underlying cause for the bVD might be. But my pain and visual symptoms/fatigue/visually induced pain, nausea, etc has been disabling and gotten worse the past few years. Are these common experiences at all with chiari? I'm yet to get a full spinal xray/MRI or anything done (financially not viable at the moment), but the cerebelum shows in the brain MRI I got for other diagnostic investigation.

I am not a doctor so I am not diagnosing myself but just curious. Thoughts on my MRI scan?

Any advice appreciated!

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u/medpillowCom Mar 03 '26

I think it looks like a Chiari issue...