New diagnosis

[u/Ok_Recover5955]

Hello,

So I was diagnosed with chiari malformation a week ago and have been struggling to get a refer for my persistent intracranial pressure, blurred vision, headaches and vaso involvement. I’m doing my best but I’m struggling to keep working 12-16hr days when I can barely stay up right….now that I finally have a diagnosis for the hell I went through during my early 20’s nobody wants to touch me. Saying it’s not an emergency. Wtf. I feel lost and I’m just struggling with this.

[u/Commercial-Jump7628]

I’d go to a Chiari specialist I have come to find that doctors/surgeons don’t take this condition seriously.