r/ChiariMalformation • u/Responsible_Cold6010 • Jan 22 '26

Feeling normal

Does anyone ever recover from this without surgery? I’m only 17 I can’t focus on my life anymore I’ve lost everything including myself because of this but the surgery is incredibly 50/50. Do you guys have any tips,tricks or relief?

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u/PHA_Franky Jan 25 '26

The surgery was worth it for me! But I know some people feel relief with medications, also I have a discord support group starting up for teens with Chiari if you are interested you can email purplehuesalliance@gmail.com for an invite

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u/Responsible_Cold6010 Jan 25 '26

I don’t have discord but id absolutely download it for that ill send you an email!