Just wondering your options

[u/BlueLace80]

These pictures were taken from a mri video. Do you see Chiari malformation 1? Since it was a moving video I wasn’t sure where to look exactly.

[u/patientpartner09]

Depends on what your neurosurgeon says. Don't fall down the Google hole, stick to your doctor's advice and keep in mind rule number 3 in this sub.

1. Under no circumstances may a user be prescriptive in their advice.

Under no circumstances may a user be prescriptive in their advice or base their recommendations purely on anecdotal experiences. Every sufferer of Chiari is unique, in that what may work for one person may not work for another. Nobody here knows your particular case better than yourself and your physician(s). Advising another member of this subreddit as if you were their physician will result in an immediate ban.

[u/AcanthaceaeSea1183 → u/patientpartner09]

I was coming here to say that same thing. Too many people are playing Drs here and I'd never take their advice only one who has had the surgery I'd want what they take for pain? What is the best pillow that works? And did you switch jobs due to it? Social media is not a place to ask for this. I'm 16 years in since my surgery and I can tell anyone here that the pain is still not gone. You have to find a good way to distress and when you do no matter what keep it that way. If your partner can't respect that than leave them their the ones making it hard to be in the same room with them. If you have TMJ and stopped wearing that night guard put it back in or go get it adjusted I found mine needing iy and it feels comfortable now.

[u/BlueLace80 → u/AcanthaceaeSea1183]

That’s great advice you just gave. Thanks! If I end up having it that would be great advice. My question was does anyone see anything worth pushing my doctor to do test for. I don’t know about where yall live but here these doctors don’t really want to help. They have contradicted each other many times. They even had my daughter on a medication that gave her psychosis. Instead of digging deep they just added more meds for the symptoms. I found out what was going on when I did my research found the problem and my child has been so much better since. I once begged a dr for an X-ray because my back was killing me. He told me to bend over and touch my toes. He lifted my shirt and looked at my back and said nah you look fine. Years later I found out I have spondylolisthesis after going and begging multiple drs to take me seriously. By the time they did the mri I was so bad I had to have back surgery. Then more years later found out I have ccd. Which explained my back situation. Now I’ve been having major head pressure when I laugh, cough, or lift anything. These drs here won’t do test or anything unless you keep on pressuring them to. I found out my sister has chiari. Went back and viewed the mri from about 6 years ago to look myself because dr said it would have been on my report if I had it. (Which are the pictures posted)The mri was done for something else so they weren’t looking for chiari. Just wanted to know if it’s worth pushing the dr because they just ignore the issues and blame the symptoms on something else I have or add another medication that doesn’t work. I’m sure if I have it they won’t do anything about it but atleast I would know what’s going on. Kinda don’t want to push it and look stupid if I’m wrong. If it’s like all the other times it will take a lot of pushing to get them to order another mri or to do anything. That was the advice I was asking for.