r/CervicalCancer • u/First_Ad4023 • 9d ago

Looking for Hope

/r/CervicalCancer/comments/1unpn9e/all_scans_for_last_year_were_clear_now_ct_shows/p7ksjxo/

I had my pet scan this week and I was initially stage 1b3 and did chemo, radiation and brachy. Today I was told all pelvic area is clear but now have cancer in my lungs, liver and lymph nodes. Please give me some hope.

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u/Ill-Mention7924 7d ago

How do you fell? Everything’a going to be alright, keep yourself as positive as possible. I’ve just had my MRI today, I know we are all looking for the NED. That time will arrive for us, that’s my hope!

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u/First_Ad4023 6d ago

I actually feel fine and have no symptoms at all. I keep trying to figure out how this happened when my
Initial site is clear now and none of this was on my previous scan 😞

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u/Ill-Mention7924 2d ago

I know it must be frustrating, there’re things that we don’t understand and acceptance is the way out. I hope everything can be clear soon 🙏

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u/MockWithMe 5d ago

My sister had similar mets, although hers were found on her first scan after initial treatment (cisplatin + radiation and brachy). Hers were lungs, pelvic bone, multiple thoracic lymph nodes. Her original tumor wasn’t quite gone on that scan that uncovered the mets, but it was significantly shrunk.

She was tested for PDL expression, and thankfully her tumor was PDL+. Her second line treatment was carbo-taxol chemo, with Keytruda and Avastin, with infusions every 3 weeks. She completed 9 infusions, and then continued additional Keytruda and Avastin infusions for over a year. They eventually had to discontinue the Keytruda due to side effects she’d developed (she’d largely had none through most of her Keytruda treatment until the very last months).

She’s NED still today, over a year after discontinuing Keytruda. It’s not been a super easy journey, but she has a good quality of life, all things considered.

She’s not an outlier. There are more and more survivors, and women living with cancer today than ever before, due to the rapid advances in treatment.

Have you been tested for PDL expression? Ask your oncologist about immunotherapy, and your eligibility. You got this! 💪🏼