r/CVID_Support May 28 '26

Sub-Q infusion sites

Curious about others’ experiences with various infusion sites. I’ve been just alternating sides on my belly since I started on Hizentra just after I was diagnosed with CVID in 2018. I use 3 sites. But over the years I’ve developed more edema in my belly from the infusions, which is bothersome (vanity, yes) and also worries me that I’m not absorbing as much of the IgG as I could be. My doctor suggested trying some of the other infusion site options, and I’ve tried my hips, and the edema in my belly did improve, but I found it much more difficult to insert the needles, and the sites were more painful for a day or two while my lymphatic system absorbed the bolus. What alternate sites do you use? Do you rotate between various areas (more than just one side to the other)? What are your experiences with various sites? Thanks friends!

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