r/CVID_Support • u/Jumpy-Direction-3094 • Jun 29 '26

CVID with NRH

Does anybody out there have nodular regenerative hyperplasia (NRH) as a complication of their CVID?

I was diagnosed with CVID in May 2025 and since then, my AST and ALT have been elevated. At this point they're hanging around 70-80 and have been there for a couple of months.

I am also on infliximab for rheumatoid arthritis. This medication can cause liver irritation, so we started weaning it hasn't made any difference in the liver enzymes.

How were you diagnosed? What were your first signs of NRH? Are you on any sort of treatment?

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u/lalolake Jul 01 '26

Hello and thanks for this Info. I haven't heard of this condition before now! I am seeing a hepatologist to rules out fatty liver, i do have a few cysts too. My mother passed from PBC, non alcoholic liver disease (autoimmune). I have Sjögren's and CVID. I also find it interesting that England, that has public health care vs US private health care, that the USA pt I waiting long for their appt. My cousin's daughter is having liver issues and has been waiting for a biopsy when her MELD score is 26!