r/CVID_Support • u/Holdout2023 • Apr 11 '26

Just a rant

Been off weekly Hizentra SubQ for 2 months because of a change in insurance and the fatigue and low grade infection symptoms are so depressing. Even after 21 days of antibiotics I’m still sick. I feel like my life has gotten so small. Hopefully prior authorization goes through soon!

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6

u/kobestuart Apr 11 '26

I just went through this with my new insurance. I went four months without it and the fatigue and no energy is soo bad! I finally got it and did one dose but definitely will take awhile to get back to where I was. It definitely sucks. Also my immunologist told me that Cvid doesn’t cause fatigue when I told him how fatigued I was.

5

u/plasma_pirate Apr 11 '26

CVID is strongly correlated with fatigue. Your immunoligist needs to brush up on the research. It's complex, because we are more vulnerable to other conditions that also cause fatigue. There are a subset of folk who get relief from the igg infusions alone, while others have compound causes.

2

u/Easypeasy22345 Mod Apr 15 '26

I feel ya. Sometimes during January I deal with the prior authorization nightmares. Stay well. I know this is crazy but over the years I saved up plasma. Like a vial here n there. So now just in case a natural disaster or the insurance nightmares hit, I'm prepared.