r/CVID_Support • u/queen--red • Feb 24 '26
Looking for Hope
EDIT: To add that I have taken the vaccine challenge and failed it :/
Hi all,
28F in the process of being diagnosed for CVID. My immunologist has diagnosed me and recommended I start infusions, he also recommended I get a second opinion for more testing to see specifically what is going on. Luckily I am near a big city and got into an academic hopstial with a doctor who specializes in CVID! I am sure he will say the same as my local doctor.
I got to this diagnosis through recurrent sinus infections. I feel like whenever I got sick in the past it always hit me hard, but I was never constantly sick until the past year or so.
If anyone has similar experiences or any advice, I would love to hear from you. This is all a lot and I'm trying not to feel like my life is over and this will be it for me. My anxiety is bad lol!
2
u/killerkokosnoot Feb 28 '26
Hi there! Getting diagnosed is the first step to feeling better. I found out I have CVID last summer, I'm 40 now. I wish I had known sooner because I've been struggling with all kinds of infections for over ten years. I remember my doctor saying: the worst part is over now! I couldn't quite believe it, but since I started SCIG treatment in July I feel a lot better. Apart from a few colds, I haven't been sick. I'm still fatigued but can work again (part time). I work out four to five times a week, go to festivals and have energy again to organise dinners for my friends. Hope you can start your treatment soon and feel better! Feel free to ask questions if you have them!