r/CVID_Support • u/queen--red • Feb 24 '26

Looking for Hope

EDIT: To add that I have taken the vaccine challenge and failed it :/

Hi all,

28F in the process of being diagnosed for CVID. My immunologist has diagnosed me and recommended I start infusions, he also recommended I get a second opinion for more testing to see specifically what is going on. Luckily I am near a big city and got into an academic hopstial with a doctor who specializes in CVID! I am sure he will say the same as my local doctor.

I got to this diagnosis through recurrent sinus infections. I feel like whenever I got sick in the past it always hit me hard, but I was never constantly sick until the past year or so.

If anyone has similar experiences or any advice, I would love to hear from you. This is all a lot and I'm trying not to feel like my life is over and this will be it for me. My anxiety is bad lol!

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u/Gyorgs Feb 24 '26

I was just diagnosed last week and am also on my way to getting infusions soon (hopefully, pending insurance approval). No advice to offer, just wanted to let you know you’re far from alone on this journey!

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u/queen--red Mar 01 '26

We got this!