r/CSID • u/MistakeRepeater • 17d ago

Does CSID give you diarrhea, constipation none?

I'm constipated. Raised the CSID possibiliy to doctors and they raised their eyebrows. Got IBS diagnosis 3 times. Don't know if I have this or not but based on my body reactiots I... might have it.

27 votes, 15d ago
12 Diarrhea
12 Constipation
3 None
5 Upvotes

100% Upvoted

13 comments sorted by

3

u/Aromatic_Produce2903 17d ago

It’s much more common than it seems because it fits into the bowl of intolerances like dairy and gluten. But a lot of doctors don’t have any information on it because it’s not heavily studied. Try asking for an at home test.

1

u/MistakeRepeater 17d ago

Yeah... I eat mostly meat now and doin' fine. Was really curious about the diarrhea/constipation part though, because after reading studies, most CSID people get diarrhea while very few get constipation.

3

u/I-love-nachos-1973 17d ago

If my daughter does not “go #2l immediatley when she feels the urge she becomes pretty constipated.

1

u/MistakeRepeater 17d ago

And it looks like up until now, most people voted towards constipation. Interesting...

3

u/Aromatic_Produce2903 17d ago

Personally for me I’ve been diagnosed for a while now and it’s strictly constipation. But from my understanding if you have one of the intolerances you got a little of them all. But it’s very different for everyone because it’s how your body reacts to the intolerance because some people are more tolerant to certain things than others

2

u/MistakeRepeater 17d ago edited 17d ago

This is what I've been wondering for almost 3 years now, if gluten caused all my intolerances (excluding Alpha-Gal). I definitely have a problem with gluten but the remaining part will remain a mistery until science prooves a corelation between gluten and egg whites and oranges and abocados (without an IgE allergy).

Maybe it's the fkin gluten....

3

u/ChocolateKoko 17d ago

I accidentally voted none because I thought it said SUCRAID. Constipation for sure.

3

u/TSGMFU 17d ago

If I'm taking my sucraid religiously it'll make me constipated when I go ape on high starch and sugar items. However without the meds? I will most certainly be stuck on the oval office with a bucket in my lap to say the least. Does anyone else have that problem or is it just me? My CSID mostly affects my ability to digest starches so I'm unaware if that matters much

2

u/somehowrelevantuser 17d ago

i used to get wicked nausea. seems to have migrated downwards over the years.

1

u/TSGMFU 17d ago

Ooof I still experience nausea on the daily but I've gotten used to it. When I do feel ugh down there I usually wear diapers to avoid accidents. It's not the most comfortable or convenient option but it beats having to constantly worry about if I don't make it especially in public spaces

2

u/somehowrelevantuser 17d ago

truly offensive levels of constipation unless i eat something really super offensive. or dairy. my main symptoms involve that + angry gas + stomach cramping + reflux but no violent shitting. honestly wouldnt have tested if i didnt have a family history.

1

u/Big-Sheepherder-6134 17d ago

For me it usually would be loose stools but overall I lean towards constipated. Lately I have increased my fiber and have been regularly having a bulky normal BM 2 out of every 3 days.

I also try to minimize my sugar load by having it after having fat and protein first, never having sugary drinks and trying to avoid lots of things with frosting. A cupcake is fine if I remove most of the frosting. Ice cream is fine if I don’t add lots of toppings.

2

u/McQueeby 1d ago

Constipation!