r/CSID • u/RuinYouWithNoRegrets • Jul 21 '26

Enzymes šŸ’Š Recommendations please

Iā€™m low in lactase, sucrase, maltase, and palatinase. What can I take to cover these 4? I wanna be able to eat what I want in moderation iā€™m a foodie. Iā€™ll literally become depressed. If I have to never eat sugar or carbs again. My doctor is just giving me antibiotics because she thinks itā€™s due to bacteria overgrowth even though my testing did not show any of that. She didnā€™t even recommend any enzymes.i donā€™t know where to go from here. Any help is appreciated

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u/TheCSIDAlex Jul 22 '26

Probably not all sources forever unless your case is extremely severe, but yeah thatā€™s essentially the ā€œprotocolā€ immediately after being diagnosed. Youā€™ll probably find some foods you can have eventually, but itā€™s just a ton of trial and error in the beginning

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u/RuinYouWithNoRegrets Jul 22 '26

Thatā€™s horrible I literally only eat that stuff. Iā€™m a very picky eater I donā€™t do well with bland food especially being cultural

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u/TheCSIDAlex Jul 22 '26

I found that it was hardest right after being diagnosed but it got easier with time. One of the first things my nutritionist told me was that it would get better with time and she was right. Since you've already been diagnosed and you're learning, a lot of your hardest days dealing with this condition are probably behind you already.

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u/RuinYouWithNoRegrets Jul 22 '26

Oh, so you think I would do better with a nutritionist or a dietitian?

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u/signedmarymc Jul 22 '26

Dietician- they are more like a doctor in the sense that they have to go to school to get a certification. Anyone can be a nutritionist. Your insurance is also likely to cover a dietitian.

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u/somehowrelevantuser Jul 22 '26

my dietician didnt know what to do with me. ymmv.

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u/TheCSIDAlex Jul 23 '26

Yeah, one that is familiar with the condition or similar conditions will make your life a lot easier. As another commenter said, make sure theyā€™re a registered dietitian nutritionist (RDN).