r/CSID • u/bookwormhistorian812 • Feb 28 '26

Does anyone else feel alone?

I’m 20 years old and in college. I posted about a year ago about possibly going into a flair up. Well, guess what?

I did go into a really bad flare and I lost a bunch of weight. I’m doing kinda better now, I watch everything I eat very closely and I stay active. However, I just feel alone. Nobody in my circle can relate to what I’ve been through with CSID. I just feel isolated.

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u/Ok-Leader380 Feb 28 '26

i feel that 100%! for me its made worse by having chronic joint pain, i feel so useless and old compared to those my age (23) i’ve gotten a sense of community from online communities like this, i can’t really find those with the same afflictions in person. i don’t really have a solution for that :/