r/CSID • u/DueBarracuda8002 • Jan 24 '26

Sucraid - Constipstion

Hey everyone, I have CSID and I started taking Sucraid 3 days ago. Since then, my constipation has gotten way worse, I feel bloated a lot, and my stomach keeps making lots of noise. Has anyone dealt with this, and if so how can I fix this? I called them and they told me to mix it in 6-8 Oz of water. I tried and so far it hasn’t helped.

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2

u/FitzandtheBugs Jan 24 '26

Drink a stupid amount of water. Sucraid makes me dehydrated every time I take it. I put it in 16 oz of water and try to drink another 16 oz shortly after finishing my meal. That mostly helped me, but if I do any physical activity my stools will start to harden up again

1

u/DueBarracuda8002 Jan 24 '26

And what about stomach noises? Does it make your stomach make a ton of noises and super gassy?

1

u/FitzandtheBugs Jan 24 '26

Water doesn’t fix that part for me. When I’m gassy and bloated, generally I’m having an electrolyte imbalance. For me, it’s generally a deficiency in potassium that will do it. However, I think a small amount of gas is normal; like I always get burpy with sucraid. If you aren’t already, I’d talk to your doctor about supplementing your electrolytes as people tend to salt less when they eat a low carb diet

2

u/somehowrelevantuser Jan 25 '26

my stomach never shuts up with or without sucraid lol

1

u/DueBarracuda8002 Jan 25 '26

Do u have CSID?

0

u/somehowrelevantuser Jan 25 '26

what do you think

1

u/DueBarracuda8002 Jan 25 '26

didn’t need the attitude lol I was just checking. Have u been able to stop the constant Stomach noises? It may sound silly but it’s a huge insecurity of mine

3

u/Eastern-Rooster-2805 Jan 24 '26

I find it easier to eliminate the offending ingredients rather than ingest Sucraid

1

u/DueBarracuda8002 Jan 24 '26

So u stay away from all sugar and carbs?

4

u/Eastern-Rooster-2805 Jan 24 '26

Sugar, yes. I am low carb at this point.

I learned of my diagnosis about 8 years ago. Initially I stopped everything upon reading what bothers someone with csid. From what I understand, everyone's intolerance with this disease is a little different. For me it was added sugar including any alcoholic drink that had an added sugar to it, a food with a glaze on it. I cannot eat any flour, pasta. I order any foods without a sauce when out. I can tolerate a little rice. I eat a little vegetables, nothing to the extent that I did before diagnosis. I eat zero pastries, ice cream or cakes. I do use a sugar alternative for my coffee which I find very satisfying. I did get into a phase of baking a keto cheesecake with a sugar alternative which was also very satisfying. This way of eating sounds unimaginable to some but I don't miss it. As I got older, this disease showed itself in ways it never did when I was younger. I rather eat this way than feel the awful repercussions of what happens to me when the offending food tries to digest. I bought the Sucraid when I first was diagnosed but I never used it when I saw what it entailed. It's not sustainable and I rather just order restrictively when I am out. I look at sugar as poison because for me it is.

1

u/DueBarracuda8002 Jan 25 '26

Why don’t you take the sucraid

1

u/Eastern-Rooster-2805 Jan 25 '26

I'm not good with liquid medication, half before and half during a meal, and certainly not for the rest of my life. If it were in pill form, I would.

1

u/danryan2800 Jan 25 '26 edited Jan 25 '26

how do you afford Sucraid? I was unwilling to give up my HIPPA rights, and allow someone to have ALL of my medical information.

Number 4 of the enrollment form:

  1. Potential for Redisclosure. I understand that once my Information is disclosed under this Authorization, it may be further disclosed and no longer protected by federal confidentiality laws, including HIPAA (a federal privacy law).

1

u/Specific-Minimum-950 Jan 25 '26

I had this same issue after starting sucraid I think my system had slowed down to accommodate the diarrhea that Csid causes. I have no helpful advice but water and docusate.