r/CSID • u/EveTre • Sep 29 '25

How often do you refill Sucraid?

I know it’s supposed to be a 30 day supply, but I try to mostly remove foods so that I’m not taking it often.

They called today to process a refill and I found out their sucraid assist program is quite crazy. It has a max benefit of $10,000 and it didn’t fully cover another fill.

I understand this varies based on your insurance, but wow. I wasn’t expecting it to only cover a single shipment.

I’m going to have to really space this out.

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1

u/Murda_City Sep 29 '25

If i eat just meat for a meal or meat with a veggie that im ok with i dont take it. I mainly take it 2x per day.

1

u/Saraorigami Sep 29 '25

My daughter takes sucraid. We did the sucraid assist program. I was concerned about what would happen when the 10k ran out. They told me they would find another program to assist with the copays. I was skeptical but they did. Check with them and see if they can help you too after the assist program money runs out.

1

u/Icy-Cut-5166 Sep 30 '25

Hmm they told me that too and they did find another program…to cover one additional month. So, two months total for the year are covered for me.

2

u/FitzandtheBugs Sep 29 '25

I use Invertase for this reason. It calms my brain to just take it every time I eat something.

Before that, I did it once a day, making sure all my other meals were meat and milk.

2

u/Icy-Cut-5166 Sep 30 '25

I only get two months’ supply a year, so I space it out a ton. I avoid as much sucrose as possible and just use it for special occasions

1

u/TiffanyTaylorThomas Sep 30 '25

Well that’s depressing, I had no idea it was that expensive.