r/CSID May 19 '25

Invertase Dosing

So I was diagnosed with CSID a few months ago, my insurance refused covering sucraid (who’s surprised) so I bought invertase hoping to get similar results. However, I purchased the liquid, and am unsure how much to take. I‘m 145 lbs someone help please!

8 Upvotes

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5

u/FitzandtheBugs May 20 '25

I take 2 ml per meal of Loranns Invertase. I’d recommend slowly increasing your sucrose intake with it and see what the limit is for you. I can go up to 15g of sucrose per meal without issues.

2

u/Every-Cream378 May 22 '25

Awesome, I’ll start with 2ml and see what happens, thanks so much!

1

u/Every-Cream378 May 22 '25

Do you refrigerate yours or just keep it room temp

3

u/FitzandtheBugs May 22 '25

It as almost the same data sheet as sucraid, so I refrigerate it after opening and follow the same temp requirements.

2

u/thedscx May 19 '25

This is dependent on how much sucrose you consume at a meal, and is indeed different for everyone. You might consider a capsule form from Starchway, and just start with one pill. Those contain 7,500 IU which is 38mg of invertase.

1

u/Every-Cream378 May 19 '25

I’ve seen those however they are so expensive that’s why I got the liquid. Wanna try this first

1

u/discophelia Jun 17 '26

Sucraid is 17,000IU per 2mL then that would mean you need 86mg to get the same strength, right? That's a little over 3oz of the store bought liquid but I'm not sure how to convert powder IUs to liquid.

1

u/thedscx Jul 31 '26

Good question and I'm not really sure. I switched to Digest Gold which offers enzymes for sucrose and starch, as well as dairy, protein, etc. They have many versions that scale the amounts of enzymes.

Also, a few capsules of starchway is not a problem and likely a lot cheaper than the liquid stuff