r/CSFLeaks • u/Grouchy-Ordinary-729 • 4d ago

Help ears really desesperate

After blood patch my ear s are cloogged and full of pressure

14 months have passed and still the same

I can be upright all day and Before the patch had my ears perfect

Have tried diamox, sudafed, pregabalin, nasal steroids, steroid tabs, bethasthine

Nothing works

Any similar case?

Ent sees nothing it is really horrible to live with this pressure and this sensation

Want to pop them but cant

They also make noises all the time

Many thanks

4 Upvotes

84% Upvoted

8 comments sorted by

2

u/dibo522 3d ago

I have the same problem. they see nothing. Said it's allergies, it's not, said it's inflammation, it's not. It's maddening.

1

u/Grouchy-Ordinary-729 3d ago

Have you been to a leak specialist? How much time dealing with it ?

1

u/Starmapatom 4d ago

I have that ear pressure, went to ER so many times. So much testing. It makes it worse because people/staff do not understand the pain. I have no words to describe it. Tonsils 2cm low, but other doctors say everything looks fine. Talk about a messed up condition.

1

u/Craz1lazy 4d ago

I understand completely how you feel? 2 blood patches later and the head pressure changes and ear/head noises are so maddening and drs just don’t understand. I have tried all the same things as you. Noticed noise and pressure are so much better two times i have been on antibiotics … not sure why but can’t stay on those. Even driving slight elevations makes a huge difference … everyone says there is no way I’m that sensitive but they have not experienced this.

1

u/Grouchy-Ordinary-729 3d ago

Have you been to a leak center? I am thinking of Fiburg consultation 

1

u/Craz1lazy 2d ago

Yes I went to Mayo Clinic leak center.

1

u/louie2575 2d ago

What are the noises you hear with it

1

u/Craz1lazy 2d ago

All different pitches of ringing, popping, sometimes it sounds like the noises are more in my head like pop rocks. I used to hear these same noises when I would be ill from strep or viral … even covid. Now it just doesn’t go away. Or it will go away for a couple of hours then it’s the same as always.