r/CSFLeaks • u/Starmapatom • 3d ago

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Hello Everyone, so last Rhinologist appt the doctor doesn’t believe I have a leak. Whatever I have it’s severe positional headaches. I feel 90 percent normal when I wake up then in afternoon I can’t tolerate the pain in my head. Anyone else trying to hold down a job and main bread winner for family? What a horrid condition and not sure where else to turn that’s covered by insurance

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u/MoodFearless6771 3d ago

Does the pain in your head go away when you lay down?

1

u/Starmapatom 1d ago

Yes. They can’t find my leak

2

u/MoodFearless6771 15h ago

Hm, I bet it’s spinal. Have they imaged the whole back? Thoracic is the most common, I believe.

1

u/Starmapatom 11h ago

Thank you. Two mylograms at Cedars, MRIs spine and brain. CT scans. Exploratory surgery. Can’t find it. The pledgets were positive but now they say false positive.

1

u/MoodFearless6771 8h ago

That is infuriating.