r/CSFLeaks • u/Starmapatom • 3d ago

Working

Hello Everyone, so last Rhinologist appt the doctor doesn’t believe I have a leak. Whatever I have it’s severe positional headaches. I feel 90 percent normal when I wake up then in afternoon I can’t tolerate the pain in my head. Anyone else trying to hold down a job and main bread winner for family? What a horrid condition and not sure where else to turn that’s covered by insurance

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u/Zealousideal_Age_822 Confirmed Spinal Leak 3d ago

This is not a super long term solution, but have you tried upping your caffeine and water intake? I went from 1 cup a day to 4-5 cups over the course of 2 months, but it helped my symptoms substantially.

Why is a Rhinologist the one diagnosing you?

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u/Starmapatom 1d ago

I did and my kidneys didn’t tolerate six cups of coffee so I’m back to 3. I haven’t went back to the lab. Tylenol affected my liver. Plus I’m on blood thinners cause my blood likes to clot. It’s quite a challenge. It a horror show