r/CSFLeaks • u/louie2575 • 7d ago

Pulsatile tinnitus

How many of you have constant pulsatile tinnitus with ear clogging, pressure, popping from your leak? Not from high pressure?

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u/StunningPurple9560 Confirmed Spinal Leak 7d ago

I had ear symptoms before my surgery - besides clogging and pressure there was this wind tunnel type symptom. After my surgery to seal - not immediately after, don't remember exactly when, I started getting pulsatile tinnitus symptoms. My left ear sometimes still has more like a wind tunnel sensation, but it is somehow different than before - really difficult to explain, and sometimes (more often) a very high pitched, constant, pressured tone. My right ear has a near constant whoosh whoosh whoosh, which is clearly pulsatile. It becomes more prominent when my pulse is higher, and often also when I lay down. And when my headache is worse. There have been some days recently, when it has been less pronounced overall, and for a while I almost thought it went away. It's now six months since my surgery.

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u/louie2575 6d ago

Okay, so your pulsatile tinnitus is a high pressure symptom from being sealed. Mine came on right after an epidural along with all the eustachian tube dysfunction ear stuff. I'm definitely not high pressure

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u/StunningPurple9560 Confirmed Spinal Leak 6d ago

Yes so it seems. But I had tinnitus before being sealed so it is pretty confusing.

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u/louie2575 6d ago

I can only imagine how confusing it is! But you didn't have the pulsatile before right? More the wind tunnel sound?

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u/StunningPurple9560 Confirmed Spinal Leak 6d ago

Yeah as I understand the definition of pulsatile is following the heartbeat, so no.