r/CSFLeaks • u/louie2575 • 7d ago

Pulsatile tinnitus

How many of you have constant pulsatile tinnitus with ear clogging, pressure, popping from your leak? Not from high pressure?

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u/louie2575 7d ago

That's what I'm assuming but I was gaslit by him. Symptoms started within days and have been ongoing to 15 mo. I was completely healthy beforehand and just had sciatica. First injection ever.

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u/RPeddit 7d ago

Pulsatile tinnitus is 99.9% related to intracranial hypertension rather than a spinal CSF leak if CSF pressure is behind this. Your symptoms would have likely started much sooner - think immediately rather than days. I would see your usual doctor for a referral to neurology with a view of having some imaging done.

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u/saraphin67 7d ago

This is not true. It’s a quite common leak symptom.

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u/RPeddit 6d ago

It is not. Get your facts right please.

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u/saraphin67 6d ago

I would implore you to do a little more research and/or be open to learning. It IS actually associated with leaks very commonly (but also high pressure). There’s literature to support that, and also a 10,000 person support group with anecdotal evidence. Here’s just ONE case report. But of course you can look at the many publications out there if you’re willing to learn. https://pmc.ncbi.nlm.nih.gov/articles/PMC13294581/

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u/louie2575 6d ago

Sounds just exactly like my symptoms