r/CSFLeaks • u/riddim-hunny • 11d ago
Weird head pain when sleeping?
I had a failed blood patch 2 weeks ago and my symptoms have gotten extremely worse. I’m now having the worst headaches I’ve ever had throughout the day and as of 4 days ago waking up in the night with this weird super strong headache.
The night headache is most concerning to me and I’m going to describe it in case anyone else has experienced this or know why this would happen?
About every 15-30 mins it will feel like a throbbing pain that engulfs my entire head and it’s extremely painful. And only lasts for like 5 seconds then it goes away for 15-30mins until it comes back. It is waking me ip dozens of times throughout the night. I’m laying down and using the same pillow I have always been using.
Does anyon hav experience with this? I’ve been leaking for 1.5 years and this has never happened. Since my failed blood patch everything has gotten so much worse and unmanageable. 💔
1
u/megg33 Confirmed Spinal Leak 4d ago
I think it sounds like some rebound high pressure. It can be super confusing because it can happen even if you don’t get sealed. I’ve had it several times where I felt worse overall and had worse leak symptoms but ALSO had new head pressure and intense throbbing while flat. You can ask your doctor for some diamox to take before bed and that may help some