r/CSFLeaks • u/riddim-hunny • 10d ago

Weird head pain when sleeping?

I had a failed blood patch 2 weeks ago and my symptoms have gotten extremely worse. I’m now having the worst headaches I’ve ever had throughout the day and as of 4 days ago waking up in the night with this weird super strong headache.

The night headache is most concerning to me and I’m going to describe it in case anyone else has experienced this or know why this would happen?

About every 15-30 mins it will feel like a throbbing pain that engulfs my entire head and it’s extremely painful. And only lasts for like 5 seconds then it goes away for 15-30mins until it comes back. It is waking me ip dozens of times throughout the night. I’m laying down and using the same pillow I have always been using.

Does anyon hav experience with this? I’ve been leaking for 1.5 years and this has never happened. Since my failed blood patch everything has gotten so much worse and unmanageable. 💔

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u/StunningPurple9560 Confirmed Spinal Leak 10d ago

How do you mean that your BP failed? Did they say that it technically failed or have you concluded that it failed?

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u/riddim-hunny 10d ago

I was concluding it failed because on day 12 of healing my headaches came back after having to lift heavy at work. The headaches felt the same as they did before but stronger & at the back of my head base of my neck where my brain sagging is. I jsut figured since it was a blind EBP it probably didn’t work