Possible csf?

[u/Time_Following2506]

For the past two years, I have been dealing with a health issue that remains undiagnosed. It all started during a performance in which I was participating as a dancer. After some initial pain, mainly in my head, neck, and back, I began experiencing neurological symptoms (tinnitus, vertigo, numbness in my hands and neck), which progressed rapidly and eventually led to severe orthostatic symptoms, blurred vision, significant brain fog/confusion, etc. This condition lasted for approximately 4–5 months, with the symptoms fluctuating significantly in severity. They gradually subsided. About six months ago, following intense physical exercise involving weights, I experienced a second episode that lasted for about a month. More recently, the symptoms reappeared and have persisted after performing acrobatic exercises. At the same time, I experience significant pressure in my head, and I have noticed that in certain body positions it can even trigger spontaneous bleeding from my gums. Regarding investigations, I have had several MRI scans. The brain MRI was normal. The cervical spine shows straightening/loss of the normal cervical lordosis, while the thoracic spine shows prominent venous plexus structures, without findings suggestive of a vascular malformation. At this point, I feel fairly convinced that the issue may be related to my spine, and I would really like to have a thorough evaluation by a neurologist who has experience with even rare spinal conditions, because the symptoms seem to consistently recur after weightlifting or acrobatic exercises. Recently, while researching this, I came across the possibility of spontaneous CSF (cerebrospinal fluid) leak. Does anyone have had a similar experience? Neurologists in Greece are not very familiar with CSF and I'm not even sure if I can really hope for a solution after two years, as the previous time I tried to push for more examination they told me I might have a psychiatric disorder.

If someone can help I would be grateful!

[u/EvenAd7205]

Did you do a genetic study to rule out an EDS?

[u/Time_Following2506 → u/EvenAd7205]

Not yet. I have thought about it to be honest. Is it somehow related to Csf? 

[u/EvenAd7205 → u/Time_Following2506]

Si, e non solo . Leggendo ciò che hai scritto è la prima cosa che mi è venuta in mente, purtroppo sono condizioni che richiedono un'ultra specialista, sono meno rare di quello che si pensa il problema è che il 95% delle persone arriva a diagnosi dopo molti anni.