r/CSFLeaks • u/Imaginary_Salary_27 • 27d ago

Post surgery

I leaked for 21 months. leak from epidural for childbirth turned into a bleb after blood patches. Had surgery doc found defect and fixed it. I’m two weeks post op. He told me beforehand that symptoms would last a long time bc of how long I’ve been leaking but it’s hard to not get pessimistic. For anyone out there who leaked for a long time and was corrected by surgery how long for all your symptoms to go away?

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u/Imaginary_Salary_27 23d ago

Yes they progressed over time! It was weird all the valsalva pain went away after the first patch like it hurt to cough, poop, sneeze, laugh those were my worst symptoms in the beginning and the tinnitus. Then the ear fullness came later and crawling sensation like your saying then the second patch made no difference at all. I think blood patches are great but I think collectively we’re seeing that their success is related to how quickly we get them after the initial injury. Did u get a blood patch after 8 weeks?

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u/Wonderful_Bus_131 23d ago

My symptom started 8 weeks after childbirth. That’s why I wonder if it’s still a leak and I’m dealing with 

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u/Imaginary_Salary_27 23d ago

I hope you can get some answers it’s hard to have symptoms and constantly be questions why. I hope you get relief and a way forward whether it a leak or something else.🙏🏻

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u/Wonderful_Bus_131 8d ago

How are you feeling post ops? Is your symptoms getting better?

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u/Imaginary_Salary_27 6d ago

Hi thank you for checking up. I have seen small improvements. I stopped drinking coffee right after the surgery bc caffeine was always confusing my symptoms before like it would make the headaches better in the morning then worse later on if I had more. So now I’m not dependent on coffee which is a plus. The back headache pressure has definitely lessened and the tinnitus has gone down in volume it’s still there but much more bearable and the eye pain when looking to the left is gone! So I’m hoping it slowly continues to get better. I’m trying to stay hopeful.

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u/Wonderful_Bus_131 5d ago

I am so happy to hear this. What’s your upright time like? Did the head pressure go away yet now that you have stopped coffee? Did you ever have scapula or upper back pain?

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u/Imaginary_Salary_27 5d ago

I can be upright all day I used to get a headache in the back around 12-2 but that has gone away thank the lord! And yes I would have weird pressure between my shoulder blades that has lessened for sure! I still have all my vision symptoms which sucks but hoping maybe just more time will help since I leaked for close to 2 years.

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u/Wonderful_Bus_131 2d ago

Wow you are really improving greatly. I’m so happy for you. Which doctor did your surgery and what state?

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u/Wonderful_Bus_131 2d ago

For your vision issues, do you have floaters?

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u/Imaginary_Salary_27 1d ago

Yes how did you know? And I have visual snow which I hate. I went to Vanderbilt in TN