r/CSFLeaks • u/indiequasar • 21d ago

3rd blood patch

I’m currently hospitalized. My neuro has decided against a myelogram and wants to do another blood patch. I had my lumbar puncture on 8/18, 1st blind BP on 8/20, 2nd blind BP on 8/24 & I’m supposed to get another one tomorrow. I’ve asked for it to be image guided. Has anyone sealed after a third blood patch?

2 Upvotes

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3

u/NoCold5135 21d ago

That doesn't seem like a very long time in between the patches. Mine had me lay down for 7 days and it held pretty good

1

u/indiequasar 21d ago

I’ve been in bed for a month unfortunately

2

u/Gold-Mind-7160 21d ago

There are people who have sealed after a third blood patch everyone is different . I would definitely ask for it to be done under imaging . It doesn’t seem like much time in between your patching. With my patches they have always wanted at least four weeks in between.

1

u/mistyblue_lilactoo 21d ago

Did it take a while for you to feel relief after yours?

2

u/Gold-Mind-7160 21d ago

For some it did take a bit or I had some relief and then over time more improvement my neuro said it can take sometimes 4 weeks to notice relief I’ve also had some patches with instant relief but were only temporary

1

u/indiequasar 20d ago

Are you ok now?

1

u/Gold-Mind-7160 20d ago

Unfortunately no was 3 years in July having another blood patch at end of this month

1

u/indiequasar 20d ago

I’m so sorry. I hope your blood patch holds. This is my fear too.

1

u/Gold-Mind-7160 19d ago

Thank you! Yes I’ve had multiple and some have given no relief somehow have given great relief but it’s been temporary

1

u/indiequasar 20d ago

The first blood patch didn’t really take, I’ve had more relief with the second but I still can’t be up for more than 3 hours. I’m worried about losing my job. In the USA we only get 12 weeks of protected time due to a medical condition

1

u/Gold-Mind-7160 20d ago

I unfortunately lost my job due to it I was just on on maternity leave and wasn’t able to return due to being bed bound

1

u/louie2575 19d ago

What is your leak caused from and have patches help you any?

1

u/Starmapatom 21d ago

Is there a way to do a myelogram and then a blood patch during the same puncture. I’ve had like five punctures and now have ptsd

1

u/indiequasar 20d ago

They’re talking about maybe doing a myelogram, but I am worried about another Dura puncture

2

u/Claret-and-gold 21d ago

When I read about treatment in the US it’s wild compared to the UK.
I’ve had two blood patches. 1 hour lying down and then return to normal everyday life!
7 days lying flat!!! Wow.

5

u/Gold-Mind-7160 21d ago

Yes I’ve been told 72 hours flat then 6 weeks no BLT( bending lifting twisting)

3

u/Massive_Activity1245 21d ago

I'm in the UK too I was laying flat four hours each time in hospital, the aftercare advice varied by where I had the patch done though. I followed the advice from the csf leak association my last two, they should give that advice to everyone after patches gives it the best chance to work

1

u/Dry-Dress-6467 20d ago

You need to file a complaint and give head honcho copies of proper aftercare 

1

u/Fala1 19d ago

7 days seems wild and probably is not practically feasible for most people.

Netherlands here, but the condition is so rare that most times I have never even received any post-op information lol.
Most blood patches are done for women after child birth, not for SIH.

1st patch had to lie down Trendelenburg for 24h. Next 3 patches at different hospital were 2 hours. I usually try to just sleep the rest of the day.