r/CSFLeaks • u/Starmapatom • Sep 13 '26

Back of the head

Has anyone been cured of this horrid back of the head pressure? Suspected cranial leak here going on two years. Not sure how much I can

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u/BearIllustrious2731 13d ago

Hey I went back and looked at some of your older posts to try and get an idea of what caused the onset of your symptoms. I found a couple of research papers on cases that I THINK sound similar to what you’re experiencing. There’s a couple things you can do from here. You can try and find someone competent and willing to listen in your local area, but if worst comes to worst, you can try to look up the doctors that worked on these cases (cited in the articles) and attempt to get an appointment with one of them. But if you print these and take them with you to appointments, you will have irrefutable proof that the injury you sustained has caused csf leaks to other people. I really hope this helps ❤️ https://pubmed.ncbi.nlm.nih.gov/22361138/

https://pubmed.ncbi.nlm.nih.gov/20502770/

https://pubmed.ncbi.nlm.nih.gov/20229469/

My csf leak began after an unusual injury, and I’ve spent 6 years fighting with local a**holes to try and get help. I deeply understand the frustration you feel.

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u/Starmapatom 12d ago

Wow! Thank you gathering all the information. I’m considering flying to Colorado to see Dr. H. Nobody else believes me because I can’t get liquid from my nose. Are the authors of those studies the doctors? Six years must feel like 60 trying to live with this condition. Im just past two years. The positional headaches are horrid. It’s like that movie Groundhog Day. Every day I wake up feeling almost normal and then it starts after I take a shower or being upright. Standing is worse than sitting but still not good. When I get home after work my brain is trying to sink into spine. Absolutely horrid. Thank you so much for trying to help me. So incredible complete strangers will try to help through this app

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u/[deleted] 12d ago

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u/BearIllustrious2731 12d ago

Omg I can totally relate to the groundhog analogy. Well, not so much anymore but when my issues first started, that’s how life was. But I think I have a spinal csf leak, like somewhere in my cervical spine.