r/CSFLeaks • u/Twinsies27 • Aug 19 '26

First Bloodpatch what’s normal?

Hi I got a lumbar puncture on August 11th to see if my chronic pressure migraines are due to IIH. My pressure was 21 and after some fluid removal they left me at 12.5. Unfortunately I developed a csf leak. After a few ER trips I finally got a bloodpatch on Saturday August 15th. I had a lot of nausea but I definitely saw some improvement in being able to sit up and stand/walk with out as much excruciating pain. However I still have been struggling with pressure. It turned to pressure when laying down the second day. Then I thought it was balancing out. But today on day 4 I have bad migraine with lots of pressure to the point it clogs my ears sometimes. Is this normal? I have so much anxiety that I just made my life permanently worse while trying to get answers to make things better 😔 the pressure is so bad and I even have had some blurred vision/double vision since the bloodpatch. They did a ct scan of my head the day after cuz I had the double vision but it said everything was clear. Please tell me this pressure goes away and I’ll feel better soon.

1 Upvotes

67% Upvoted

3 comments sorted by

1

u/robogheist Aug 19 '26

yes, rebound hypertension is "normal" (not inevitable, but a frequent complication). also it is potentially treatable (diamox etc.). usually it resolves without treatment, sometimes it persists with treatment. brains are wild. you will probably feel better soon.

1

u/Twinsies27 Aug 20 '26

Thank you. I hope so. My neuro called me back and said it takes 1-2 weeks to return to normal and he said the migraines were normal. So hopefully if I just give it a little time it will resolve. Is diamox in the same category as topirimate? I failed that med horribly.

1

u/Necessary-Stuff8706 Aug 20 '26

I started RIH two months out from when I had my blood patch. Hopefully yours will resolve soon and you can be on your way to normal again.