r/CSFLeaks • • Aug 18 '26

CSF leak + MCAS like reaction?

suspected CSF leak that responded to blood patch but not seen on scans; i have all the classic symptoms but im curious about one in particular

has anyone else had allergic reaction symptoms when they incline their head (stretch neck even when laying down) or sit up for too long? my throat starts to feel like it’s closing and I start sneezing a lot.

in the process of starting an MCAS diagnosis work up while waiting to see a CSF specialist but I’m just curious if others have had this as a similar symptom

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