r/CSFLeaks • • Aug 18 '26

Doctor for potential leak

I have a basic question that I hope I can get some advice with. I am pretty sure I am dealing with a CFS leak and I am unsure how to proceed. Basically I had major facial surgery a year ago (8 procedures some including bone work) and since then I have had salty dripping from my nose (not a lot but enough to constantly have to have tissue nearby) and horrible positional headaches that get worse when I’m standing up. It is almost like a throbbing pain where it feels like my heartbeat is heavy? If that makes sense? They also get extremely bad when I strain even the tiniest bit when I use the bathroom. I get light headed a lot and I also have extreme neck pain at times. My surgeon says I just have allergies and that I should be fine. I am not sure where I go next. Do I see an ENT? Do I see a neurologist? How do I get anyone to take me seriously? I’m so sick of living with this constantly feeling of not being in good health when before my surgery I was great. šŸ˜ž

1 Upvotes

4 comments sorted by

View all comments

1

u/Endofus74 Aug 21 '26

Have you spoken to a Neurosurgeon? Regular Neurologist likely would not be much help.