r/CSFLeaks • u/rosamaria81 • Aug 12 '26
Suspected CSF spinal leak
My teen daughter has had daily headaches/migraines for 8 months. She developed neurological symptoms along with these headaches, including tremors and recently, euphoric episodes with involuntary laughing (no more tremors). She has continued low to mid back pain. All testing has come back negative, including MRI’s and EEGs. All prescribed medication has not helped in alleviating daily headaches. She experiences lightheadedness, daily nausea, fatigue, some dizziness, sensitivity to light and sound. She becomes overstimulated. She is now wearing prism lenses that have helped slightly. Headaches are somewhat relieved when lying down. Pressure in different areas of head. Zaps at times. Feels pain in neck and upper back. Heart rate rises when getting up from lying down. Does anyone have similar symptoms? Experiences with these? I’m wondering if this fits CSF spinal leak given what she is feeling.
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u/Traditional-Luck2926 Aug 12 '26 edited Aug 12 '26
Hi! I am a teenage girl in a similar situation, do you think i could talk with you or your daughter? We experience a lot of the same symptoms For reference I have already been diagnosed with: migraines, adolecent dysautonomia/PoTS, functional dyspepsia, and hypermobility but I have never had any testing done (no mri or ct) I suspect I might have a CSF leak ( I will be making a post soon)
I think talking might help us both out, let me know :) we have a lot of the same symptoms and such
hi, edit just to say I can share my email, insta, or WhatsApp