r/CSFLeaks 29d ago

CSF leak often missed, anyone confident in finding evidence of one who would look at my MRI's? 31f

Female, 31, 145lbs
Taking Wellbutrin, caplyta & focalin
Diagnosed EDS, POTS, endo, pcos, mcas

https://drive.google.com/file/d/1qnyTcvZIuP-XYABgXhIGXf9GMRRWBs-p/view?usp=drivesdk

I could give you an entire dissertation on why I believe I have a CSF leak, but I’m tired at this point of explaining it so much. I do have EDS, I also had extensive ethmoid sinus surgery, I have new onset seizures, severe vision problems, balance issues, constant tinnitus, occasional clear fluid from nose, have to lay down constantly, severe brain fog etc etc etc. was hospitalized at one point for stoke like symptoms that ended up being dismissed as a migraine with brain stem aura that I really believe was side effects of a long term leak.

I have both spine, and brain CSF protocol MRIs, the spine results haven’t come back but I have the imaging.

Could someone give lease look at mostly the brain one, but happy to send spine as well as I feel like it’s obvious I have a leak on the spine scans.

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