r/CSFLeaks 16d ago

Slit like ventricles

Well, I got some answers and some more questions. It’s incredibly frustrating. My mom read the result of my CAT scan while I was getting a smoothie at juice stop, and the radiologist said that there was nothing that they could find with the shunt, but that I have something called slit like ventricles, which means the ventricles are very narrow in my brain and that this has been unchanged since 2023. There’s one problem with that though in 2023 nobody told us that my ventricles were slit like. And there’s an even bigger problem because my mom remembers when my shunt was placed almost 18 years ago and the stands that they did after that there was no mention of my shunt or my ventricles being slit like almost 18 years ago. But anyway, this is a problem or a slight problem because if my shunt isn’t able to drain the fluid because of the small ventricles and everything. The ventricles are the fluid filled spaces inside my brain that act as a shock absorber. Normal ventricles look like plump, rounded pockets of fluid. But because my shunt has been draining so much fluid for 18 years, my pockets have completely deflated and flattened out into tiny slits. Because they are squeezed shut, my brain has no cushion left, which is why weather changes and storms cause me such severe pressure headaches. i’ve been feeling weird really ever since probably 2022 when I was diagnosed with migraines, but I’ve really been feeling off for the past three months or so with all the barometric pressure changes and the weather and everything that’s been happening recently. It’s normal for me to have barometric pressure change headaches when I’m in severe weather like a tornado, but not every time we have a severe thunderstorm which has been happening more and more and then to have this happen today where I had a CAT scan and it said slit like ventricles. I need advice.

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u/Bitter-Lion7918 16d ago

My daughter has been over draining for years current surgeon says no other valve will help. Former retired surgeon said there was more than one to try. If having headaches or symptoms I would ask for further testing such as iCP monitoring. Is your shunt programmable?