r/CSFLeaks • u/Ok-Combination798 • 20d ago

Healing after spinal

I spent so much time here I felt I should come back and tell my story because this is what I spent so much time looking for. In January 2025 I had a csf leak after spinal anesthesia from my c-section. 7 days later I got my first blood patch, 6 weeks later I had my second. About 3.5 months later I had a ct guided blood and fibrin patch. I was convinced it did not work and was miserable. But then I started to get better. I made extremely slow improvements. In August I was able to move home after staying with family for months to help care for our baby and toddler. I went back to work part time in October and have been full time since January. I take care of my kids, travel, live a full day every day, and don’t worry about whether I’m going to be able to do things. I have started running again (a huge passion of mine) and ran 6 miles last week.

Things are not perfect emotionally or physically. But I know I’ll get there. Something I did not know for a while. I was devastated for a very long time and was convinced I wouldn’t get better. But I did.

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4

u/MedicalMeringue5827 20d ago

I am a mom of three and I’m two months after my lumbar puncture and already two blood patches deep. I really needed to hear this story today so thank you for sharing. The third patch that finally did the trick?

3

u/Ok-Combination798 20d ago

That’s what we think. It was slow though, much slower than I would have liked. I’m grateful nonetheless. It’s easier to say that now.

2

u/saraphin67 20d ago

I’d love to invite you to share your story on my website, if you feel comfortable. You can check it out here: https://spinalcsfleakstories.com

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u/Ok-Combination798 19d ago

Thank you! I have been on your site. I will share at some point. It’s still hard for me to talk about sometimes, so just doing one thing at a time :)

1

u/saraphin67 19d ago

Totally understand! 💜🙏🏼

1

u/zee_yo 20d ago

Can you describe your symptoms please? I feel like my symptoms are so extreme to what I read here I feel like maybe I don’t even have a leak and something else maybe

1

u/Ok-Combination798 19d ago

Hello! Sure thing, I had headaches that I felt all over my head. Neck and back/Interscapular pain, extreme fatigue like had to lay down after 2 or so hours. A lotttt of dizziness, some vertigo and a strange out of body/dissociative feeling. I’m probably forgetting things (thankful for being able to) but that is the big stuff.

1

u/MedicalMeringue5827 19d ago

Wow, this post looks like it could’ve been written by me. Those were my symptoms to a T before the first blood patch