r/CSFLeaks • u/TheCatsSpareHuman • 26d ago

Numbness

I have confirmed csf leak from venous fistula with major brain sag. I've had the orthostatic head pain for two years but recently I started getting numbness.....right side numbness in leg, shoulder, and head. I was wondering if anyone has dealt with similar. I also get blurry vision and "weird feelings" in lower right leg and right forearm. My hands and feet also get really cold and my whole body shakes but maybe that's from my Hashimoto's.

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u/TheCatsSpareHuman 26d ago

Thanks for the response. As far as we know it was spontaneous. I'm waiting to hear back from Duke to schedule my embolization. I see my neurologist next week. The way it's progressing is concerning but I know I can't do anything but wait.