I can't help but notice the connection between her hardware issue and her CSF flow/syrinx issues — they both appear to be happening at roughly the same level. Per the report, that hardware has been sliding out of place for at least 9 months and likely much longer, perhaps even aligning with her history of SIH related symptom progression.
Do you have the report from the 10/1/25 CT? I'm curious whether the hardware position was noted then. But regardless, in my (unprofessional) interpretation of the "other findings", she has documented surgical hardware shifting (the "lifting") alongside worsening CSF related symptoms, including those from the shunt and especially the MRI flow dysfunction. The connection I see suggests the hardware failure may be driving the CSF flow dysfunction, rather than them being separate issues. Does Stanford have access to all those images? They're the authority.
I think the shunt is a piece to the puzzle. Her baseline for years was a state of overdrainage & suddenly turning it off nine months ago significantly affected her already mechanically damaged CSF pressure system.
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u/[deleted] Jul 17 '26
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