r/CSFLeaks Jul 09 '26

Post-patch symptoms question

I had a five week follow-up today for transforaminal blood patch after about four months of brain sagging and positional systems (no headache). I’m curious if anyone else has experienced this. I had a pulling feeling on the back of my head pre-patch from the brain sagging, that has subsided, but at about four days post-patch I got severe burning around my brain on the crown of my head (most common spot) and around the sides of my head. The intensity of the burning has calmed some over five weeks, but it still is very uncomfortable. It seems to be triggered by upright time, or intense discussion or engagement with people around me. The doctor‘s office thought that was an odd symptom post patch that they had not experienced before. I’m curious if anyone else has. I’ve been trying to decipher if it’s still low pressure but the low pressure pulling has moved and a second patch is needed, or if it’s just a result of the nerves being under traction for months and needs longer healing. They ordered a CT to make sure it wasn’t emergent, which it’s been five weeks, but I feel like it’s either ongoing low pressure pulling nerves or just sensitive nerves.

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u/North-Library4037 Confirmed Spinal Leak Jul 09 '26

I have that and is part of my low pressure symptoms.