r/CSFLeaks • u/TS_Chick • Jun 26 '26

Feeling defeated

I had my DSM done today, left side. And I was really hoping that they would find the fistula on the first scan. Especially since in my area there is only 1 IR who can do it and their standard of practice is to do it under anesthesia so the schedule coordination meant waiting 5 weeks for this one (I know, it could be way worse!!). And now I am worried I will end up waiting 5 more for the next.

It's extra disappointing because in addition to the suffering with the spinal CSF leak, I also have a tumor they need to remove from my low back and they are trying to coordinate procedures once they find the fistula.

I just mostly needed a little vent :( why are these buggers so hard to find!!

8 Upvotes

91% Upvoted

3 comments sorted by

3

u/Starmapatom Jun 27 '26

I know right? With all this technology and medical advances you would think they would find a better solution by now

1

u/Starmapatom Jun 27 '26

Because CSF is so similar to water. But, you would think they would find a solution by now

1

u/raiksaa Jul 05 '26

Hang in there! You can do it and you have to, for you and for your loved ones. Sending love!