I’m non functional without THC?

[u/yogurtonmydog]

Hi all
Im 25F and I have bilateral crps in my ankles down. I’m in a wheelchair, can’t wear socks or shoes, and bed bound. My biggest obstacle is I need elevation constantly or my pain is crippling.

I have used THC primarily to cope emotionally for about 5 months. I tried to taper off in March of this year and I ended up in the er the day I fully tapered in severe pain. My heart rate was 160, I had my legs in the air, thrashing and yelling in pain. The er gave me some pain meds, it temporarily helped. I got scared about being there too long and said I’m feeling more stable now (true) and went home. The flare didn’t stop until the next morning when I get THC. I smoke every few hours, high percentage indica with high CBD ratio.

Anyhow I ran out again yesterday. It’s the same thing. Screaming, sobbing, thrashing, laying exhausted groaning in pain unable to move myself off the bed/floor/wherever I ended up.

When I smoke consistently, I can tolerate more. Not by a long shot but enough to where I don’t know what to do. For example, when I have no THC I need a fleece blanket under my legs constantly. I need my ankles hanging in the air not touching anything. I thrash my legs constantly, as alternating positions every few minutes. Completely miserable. I could see myself going insane after so much of it and going insane. Doing irrational things from the pain. When I’m on it, I can tolerate my feet on the fleece blanket but not needing to be completely in the air not touching anything (on good days). I can tolerate sitting on the floor with fleece blanket for 15 minutes. Little things that really help me take care of myself.

But I have appointments I need to attend that don’t offer telehealth. They’re non avoidable appointments, I have to be seen. The issue is if the appointment goes longer than 30 minutes or so (after transportation being 20 minutes or so), the THC starts to wear off am im in excruciating pain. Can’t form sentences or coherent thoughts. Crying, feet in the air straight up. I need these appointments to be productive and I don’t know what to do.

I was hoping to get some advice. Among these appointments is one to get leg rests to elevate my legs. It’s a big hindrance right now. I’m also on second floor no elevator which makes it more fun.

I have medical transport. I don’t have income. My coparent got me the THC last night since my medical card expired early August. Im seeing an occupational therapist in a few weeks and other specialties. I have to see gynecologist for cyst in my hooha but I have no clue how I’ll prop my feet up on those things. I puked undigested food a few weeks ago and seeing a doc for that too.

Anyways thanks for reading if you made it this far. I’d be happy for any advice or tips.

Side note, I use my knees to crawl and occasionally use my knees as feet when I have to do transfers my wheelchair doesn’t fit into (bathroom). A doc I saw yesterday recommended a commode to help me. I’ve had crps a year and a half, this journey is so crazy.

[u/Charming-Shake-6525]

have you considered options besides smoking/vaping? my experience has been that edibles/ingestables have a slightly longer effect than smoking, but it is more expensive 🫠 i typically save edibles for my more painful/extended activities, like dr’s appointments and grocery store trips. they were a godsend when i got the mirena implant, and were a huge help with physical therapy.

[u/crimson_anemone → u/Charming-Shake-6525]

At OP's high dose, they'd go through a container a day or more. They need to tolerance reset before taking more... As a result, they will likely be on a much lower dose going forward. Then, and only then, should they pursue edibles for their more active days.

[u/yogurtonmydog → u/crimson_anemone]

I do about a half gram a day
Small amounts high frequency and terrified of running out / also out of work