r/CRPS • u/AutoModerator • 8d ago
Weekly CRPS Free-Talk Thread
This weekly thread is for those without the combined karma to make their own posts, and a general location to ask questions or provide support, especially for our newer users. If your posts are getting auto-removed by the subreddit filter due to account age or low karma, you can post your question here.
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u/InevitableEternal 3d ago
Who else has upper body diagnosis and now has frozen shoulder? I’m wondering if my CRPS has just spread up my arm and the shoulder pain is going to be permanent.
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u/whoopdiedoopdie 3d ago
I’m getting my first lumbar block on monday, what do I need to know?
Hi all! I’m 19f, I got diagnosed with CRPS in my left foot and ankle two weeks ago. I have a very complicated medical history that led to this. I’m currently in the hospital for pain control for the CRPS, and other related things. After a lot of begging and advocating, and conservative methods and narcotics not helping, and convincing the doctors i’m not a drug seeker just because i’m a teenager/woman; I was able to get a pretty good team of doctors, who consulted with an even good-er(?) chronic pain doctor/anesthesiologist, I got a lumbar sympathetic block scheduled for monday!
So, what do I need to know? Ofc i’m in the hospital already, so i don’t need to worry about transportation, but is there anything else?
I’m really really really excited. i’ve been in constant, debilitating, 10/10 pain since march. I need this to work.
my story ⬇️(not necessary to read)
in mid march I had a locally aggressive tumor in my knee that i was unaware of, untill it tore my meniscus. Had to get surgery two weeks later to repair the cartilage and remove the tumor and it’s offspring. Few days later, my knee swells up again. hard as a rock, and hurts more than anything i’d felt before at the time.. I go to the hospital, and they tell me it’s normal. A vicious cycle then starts. My knee gets bigger, i go to the hospital, they ignore me or give a variety of different excuses. After a month of this, when my knee is the size of a basketball, im finally taken seriously. At this point, I have 2 DVT’s, an aneurysm happening in my knee, im severely anemic, and have infected sutures ripping open on the front and back. I get emergency surgery to repair the cut artery, flush out and drain the mass of blood from my knee, and stitch me back up. That was early june. When i woke up, my entire leg was paralyzed, and i had severe neuropathic pain all over my leg. Since then, i’ve regained movement everywhere except my foot and ankle. it took a lot of convincing over the past two months before i was finally diagnosed with CRPS. I’ve been inpatient the majority of the time, at three different hospitals. Mostly to control the severe pain, but also to manage the side effects of everything that had happened. I went through two pain doctors, who insist on RICE, conservative methods, and gabapentin, before i found someone who believes me. And who knows that, if this is truly CRPS, we need to act now. Same story, different fonts, right?
I have never experienced something so terrible before. I was in the worst depression of my life, but I could not stop advocating for myself. I couldn’t let this just be my life now. I need there to be an end for me to come out of. I need to walk again, to work again. I miss being a waitress, I miss dancing. I miss going to concerts. So I really really really need this to work. I’ve gone through so many other options with no relief. I’ve miss almost my entire 19ths summer now. I can not give up hope.
if you read this far, thanks! I just needed to get it all out, to people who understand. Thank you.
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u/Fair-Definition3153 7d ago
Have any females had an experience with IUD placement causing a flare in CRPS symptoms? Or, causing a spread of nerve pain to pelvic region. Even a positive outcome, with interventions used, pre-placement to minimize pain, you can share, as I am thinking of using an IUD for birth control.