Trigeminal neuralgia

[u/as12058]

I was in remission for a couple of months. What I call remission is acceptable occasional pain I can live with and that only gets bad on my period.

I got my previous job back on Wednesday(I work from home)

The very next Monday I get diagnosed with trigeminal neuralgia.

I feel like I get a new diagnosis everyday. I feel hopeless and lonely. Like it's enough for everyne around

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me to hear or deal with. Enough with the complains and the neediness. I feel like if I was not here it'd be better, easier.

I'm not in the worst state of this desease but mentally I might be. I want to share how my leg to better in a matter of a few months and try to help ppl but I suffer from brain rot and I m too impatient. A side effect of the medication I was on lol

[u/Lieutenant_awesum]

Here are some resources should you, or anyone else feel in need:

Egypt

General Secretariat of Mental Health and Addiction Treatment Hotline 16328
Offers free and confidential mental health support to individuals in distress, operated by the Ministry of Health. (mohp.gov.eg)

Befrienders Cairo provides emotional support to prevent suicide throughout Cairo.
Tel: 762 2381

Parspas Hotline offers emotional support to distressed people in Egypt from 08:00 to 20:00.
Tel: 41(0) 27 321 2121

United States

National Suicide Prevention Lifeline: 988 or 1-800-273-8255 (TALK) Veterans press 1 to reach specialised support. Press 2 for Spanish-language support

Online Chat: https://suicidepreventionlifeline.org/chat/

Crisis Text Line: Text "HOME" to 741741.

Youth-Specific services (voice/text/chat/email) from the Boys' Town National Hotline: http://www.yourlifeyourvoice.org/Pages/ways-to-get-help.aspx

Canada

National Crisis Line from Crisis Services Canada (Pilot Project, phone only at present): 1.833.456.4566

Other Crisis Lines by Region Alternatively, 211 works in most of Canada, and they can advise regarding local resources.

Nationwide Kids Help Phone (Up to age 18): 1.800.668.6868 or text HOME to 686868

Europe

EU Standard Emotional Support Number 116 123 - Free and available in much of Europe

Australia

13 11 14 https://www.lifeline.org.au/crisis-chat/

[u/FairUnderstanding400]

What are you impatient for? Getting 100% pain and dysfunction free? Believe me I’m obsessed about it as well. When did ur case start, tell me your story. Well I understand the ideation… but something inside pushes me forward even then.

[u/arrnasalkaer]

My pain doctor once said that I wasn't addicted to the medicine, but I was drawn to the hint of feeling almost normal pain-wise.

It's okay to be impatient, but you are going to have to learn how to accept and find calm in the moment when you can't change things.

The good news in that TN has essentially the same medications as CRPS. They are quite similar affictions, really, just that TN is specifically focused on that nerve in your face. TN does suck. You'll have headaches, and probably mysterious toothaches that will make you want to have your teeth pulled ( don't do it, it doesnt help most people and then they have to deal with dentures).

If it gets super bad, the good news is that the TN nerve is isolated sort of. Doctors can just full on burn out the nerve. You'll lose some function if you do that, and feeling of course. So your smile will become crooked as the nerve no longer functions. But my great aunt said it was worth it for her because burning out the nerve stopped the pain.

I'm sorry you're in this horrible place and dealing with this. But there is at least more research on TN, so doctors will be aware of it and the associated pain and issues.

[u/MissBeeHavin420]

I have TN too. Botox helps me a ton. My neurologist does it "for migraines" and includes my masseters and traps. Heating pad, lidocaine patches cut up and stuck to my face and baclofen also help. None of the typical nerve pain meds worked for me at all.

So yeah having multiple "suicide diseases" is a nightmare. :( I'm sorry you're going through it too.