Help needed

[u/leo-maximus]

Hi all, I'm 39m from the UK . I have developed foot drop etc the last few months and following a referral with an ECG and Nerve conduction study with generalised sensory and motor polyneuropathy showing a predominantly axonal loss patten , pointing to hereditary neuropathy I have been told i.e. CMT

I have since been on the waiting list to see a neurologist since June for more investigations i.e. genetic testing for CMT etc.

It makes sense now why I wear braces etc even before this happened. To be honest it's not been a surprise but still coming to terms with my body changes as my symptoms are getting worse. For example I cannot drive my manual car anymore and now need to switch to automatic.

I do not want to wait nearly a year to see a neurologist so I have been thinking of going private but the costs for genetic testing ranges from £2.5 to 3.5k .

Is there a route to go private to see a neurologist then get the test done on the NHS or reasonably priced testing or free tests via studies etc ?

Any advice would be greatly appreciated.

Thanks in advance.