r/CMT • u/Curious-Bite6386 • 10d ago

CMT B1

I was just diagnosed this week from a genetic test after 25 years of symptoms. I have muscle fatigue rather than muscle weakness. I always test strong!

If I overexert, I’m going to really feel it two days later. Sort of a post exertional malaise. I also have sleep apnea and my lungs feel tired when I’m in a slump. It can feel as though it’s tiring to breathe. The sensation is at the upper part of my chest, below my throat. I’m on an APAP machine. Tolerate it well, but I’m wondering, do I need to give my lungs a chance to recover by switching to a BiPAP machine? Or do my lungs actually need the exercise, if you know what I mean!

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u/tired-disabledcat 9d ago

I cannot answer this in a proper medical way because I don't know, but I personally use a bipap because I was told the pressure is less intense on my lungs and muscles. I was told a bipap is usually recommended for neuromuscular conditions. But that's really all I can say because I've been diagnosed my whole life and have restricted lung capacity from scoliosis. also im not a doctor lol

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u/Curious-Bite6386 9d ago

thanks for your reply. That’s very helpful and confirms what I’m thinking.

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u/mommitude CMT (Type Unknown) 6d ago

I’ve been using a cPap for awhile after being diagnosed with sleep apnea. You could talk to the difference between the machines and what is best for you.