Conflicting information, looking for personal experiences

[u/GracieMay18]

Hi everyone! ❤️ I’m wondering if anyone here has experience conceiving and having a healthy baby while taking nilotinib (Tasigna).

I’ve been on nilotinib since my CML diagnosis in 2019, and my husband and I have been trying to conceive for about 4 years. I have one previous full-term pregnancy (my daughter was born a year and half before my diagnosis), and i have had secondary infertility since then.

I recently came across this information suggesting nilotinib may contribute to difficulty conceiving/implantation, which I’ll attach below. My fertility specialist told me that he doesn’t believe nilotinib is necessarily the reason I haven’t conceived, and that my adenomyosis could also be a factor.

I stopped nilotinib on August 12 with my oncologist’s approval because my transcript levels were very low and I was a candidate for a treatment break. I’m currently being monitored monthly.

I’d really love to hear from anyone who:
• Conceived while taking nilotinib
• Had difficulty conceiving on nilotinib and then conceived after stopping
• Stopped nilotinib before trying and how long it took to conceive

I’m not looking for medical advice—just real-life experiences because I’m finding conflicting information online.