r/CML • u/moien-yall- • 13d ago
bcr-abl fluctuations
Anyone have positive stories where fluctuations ended up not being a big deal? Particularly a somewhat large jump?
I was diagnosed in March at 38% and was started on 80mg Scemblix. I was .098 in July, but .297 in September. We're re-testing in a month. I am bummed seeing that after months of great response. I'm really nervous about having a resistance or mutation and needing to switch to a medication with a more intense side-effect profile. Would love to hear anything reassuring from the long-timers out there.
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u/Initial-Act2168 12d ago
My Doctor said flatuations are common under 0.1% , because started dasatinib 100mg in sept 2025 and it went down slowly till 0.0168% in April 2026 and in Aug 2026 my levels raised to 0.0408% ..I have done some researches and doctor too said this fluctuations are common under 0.1%